Uganda - American Sickle Cell Rescue Fund

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Children's Party 2008

Annual sickle cell anemia children's party at Bat Valley- Kampala

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UASCRF President posing with some of the children suffering from sickle cell anemia

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UASCRF President dancing with Mr. Wamala

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The Late Mr. Batheral Wamala giving testimony. Died May 2008 at age of 80. Survived by 16 children & 84 grandchildren. He was the oldest sickle cell anemia patient in Uganda.

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Mr. Wamala & oldest son listening

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UASCRF President posing with children suffering from sickle cell anemia

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Mr. Wamala talking to President of UASCRF prior to cutting the cake

It is estimated that 20% of Uganda's population have the sickle cell trait.This predisposes a very high incidence of sickle cell disease.Unlike developed countries where sickle cell disease can easily be detected through newborn screening, there is no such program in Uganda and as such early interventions as prophylactic administration of penicillin in children until age five are not taken.

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Chairperson of Sickle cell Association of Uganda & President of UASCRF.

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Press conference at Mulago hospital, Kampala

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Children  entertaining visitors and their parents

The disease is most prevalent in the tribes of Bamba, Basoga, Bagishu, Baganda, and Lugbara. Unfortunately the disease continues to carry a lot of stigma and stereotyping among the population.There is a wide belief that sickle cell disease patients will not survive their teenage years. Sickle cells sufferers and their families live a life of isolation and fear with poor pain management control methods. 

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some of the children with SCD entertaining

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Cake time

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Children with SCD singing & telling their troubles

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Muzei Wamala opening the dance with Captain Mulumba

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President of UASCRF & 14 year old diagnosed of sickle cell disease at the age of 10

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Time for dancing with the children

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Testimony from the guest of honor Captain Mulumba

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Good times with Mr. Wamala

One of the most important developments in the fight against sickle cell in Uganda was the formation of the Sickle Cell Association of Uganda.This association has been very instrumental in hauling sickle cell from the closet to the open where it belongs.The Association has been able to organize outreaches and seminars in many parts of the country. The Uganda-American Sickle Cell Rescue Fund is committed to helping the Association  in the sickle cell fight.