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There are 25,000 children born in Uganda annually with Sickle Cell disease.Over 80% of
these children die before they celebrate their fifth birthday.
Their only crime is being born in a poor country
where per capita income is less than $500! The health-care system is itself grappling with an overwhelming demand of health
services with limited resources and poor management. Most often the basics of medical attention are not available to these
unfortunate children. Our hearts bleed!!
Having been blessed with now a six year old daughter with sickle cell
disease, we know first hand how daunting and challenging the frequent hospitalizations and clinical visits are.Yet we are
blessed that our daughter lives in this part of the world where the best treatment that medicine can offer is available
to her.
Our family decided to form UASCRF to raise funds that can be used in the fight against sickle cell in Uganda.
We have tried to work hand in hand with the Sickle Cell Association of Uganda in helping them build capacity since 2006. As a
family we also donated a piece of land that is to be used for the construction of a sickle cell center.
UASCRF President and Chairperson of Sickle Cell Association of Uganda visiting a sickle cell clinic
at Mpigi District in January 2008.
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